Jade Almond has been left paralysed for the second time in a year, with the most recent after leaving the hospital, finishing her physiotherapy and learning how to walk again.
Whilst traveling home from the hospital with family, Jade 16 was involved in a motorway crash. The impact was so server it has left Jade bed bound and with the strength of a newborn baby.
Jade, from Abram, Greater Manchester, said:
‘It’s heartbreaking being in this position and knowing all that hard work has been undone. ‘I was pretty much back to normal – able to run, dance and play football again – I was 80 percent there and only had a bit of a tremor in my leg. After the car crash, it’s worse than it’s ever been as now it's affecting my whole body.’
'My sitting balance has completely gone – my core and my neck are really weak – and I can’t sit straight. ‘It seems like I’ve lost all my strength, it’s like I’ve only got the strength of a baby. ‘Even when I’m lying down I have to have pillows under me or I fall to that right side. ‘It’s so frustrating not being able to move, all I want to do is get up and back to where I was or at least move instead of just lying in a bed all day.’
Jade's family crowd-funded £14,500 to pay for 7 months of physio from her first accident, a head injury that left her with (FND) and unable to walk or concentrate with unstable and uncontrollable shakes. They are now seeking for new donations to once again help fund this new round of treatment.
What is FND?
Functional Neurological Disorder (FND) is a common and disabling cause of neurological symptoms. People with FND can experience a wide variety of symptoms including:
weakness and abnormal patterns of movement (e.g. tremor, abnormal posturing of limbs, gait problems)
attacks of abnormal movement/change in awareness that resemble epileptic seizures (functional seizures/NEAD)
visual and speech problems
Whilst the symptoms may appear similar to neurological diseases including those of Multiple Sclerosis, Parkinson’s and Epilepsy, and can be just as disabling, they are not caused by structural disease of the nervous system but instead are a problem with the “functioning” of the nervous system.
People with FND appear to lose the ability to control or access their body normally. The “basic wiring” of the nervous system is intact, but when people with FND try to use it to move, feel or think, they cannot get access to it normally. FND is not a problem with motivation, and symptoms are not imagined or “put on”. It is a specific diagnosis, and not simply a diagnosis that is used when tests are normal or no better explanation can be found. Specific features on clinical history, examination, and related tests, are used to make the diagnosis.
FND overlaps both neurology and psychology, and this is reflected in the confusing array of names that are used to describe FND. As understanding of functional neurological symptoms has advanced, so has the debate among medical professionals regarding the diagnostic criteria and terminology as can be seen with reference to the 11th revision of the World Health Organisation’s International Classification of Diseases (ICD-11).
Historically, past trauma was thought to be the only factor that influenced the development of functional neurological symptoms, but research findings are indicating this is not the case for everyone. Current understanding is that a number of factors, which varies from person to person, can be involved in making a person more vulnerable to developing FND, and for triggering and maintaining the condition. It is also becoming apparent that symptoms may co-exist with other neurological and chronic conditions.
FND is a treatable and manageable condition, but, similarly to many illnesses, not everyone with FND will benefit from treatment and some people remain with persistent severe symptoms that can have a detrimental impact on their everyday living. Treatment is through specialist rehabilitation, with the emphasis on multi-disciplinary care. Depending on the person and their symptoms, this can include input from neurology, specialist physiotherapy, clinical psychology, occupational therapy, psychiatry and pain management.
Text sourced from https://www.fndaction.org.uk
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